CANCER symptoms can be hard to detect, particularly because they are
associated with signs of less serious conditions. One two-year-old was
diagnosed with a brain tumour after experiencing sickness and constant
tiredness.
A child, who is now two years old, was diagnosed with a brain tumour at the age of 10 months, just a few days after Christmas 2016.
Mum , 22, had taken the baby six times to their local A&E
department and to see GP within a four week period leading up to the
diagnosis. The baby started with symptoms of sickness and constant
tiredness which rapidly progressed into her losing the ability to crawl,
sit up or even support her own head.
The mom explained what
happened leading up to her daughter’s devastating diagnosis. She said:
“The sixth time we arrived at our local A&E department a doctor
checked the reflexes in her legs and suggested we get an ultrasound of
her brain.
“This revealed ‘an abnormality’ and we were transferred
by ambulance to the Children’s Hospital, who then rushed
her for an MRI scan and told us the heart-breaking news the next morning
that she had a brain tumour big enough to occupy one fifth of her
skull.”
The baby's first surgery was on New Year’s Eve that year
which was to help relieve pressure in her skull. Four days later she had
further brain surgery to remove as much of the tumour as possible.
The mom said: “Sadly after 9 hours
the Neurosurgeons could only manage to safely remove approximately half
of the tumour. Two weeks after the surgery we were given the baby’s
official Cancer diagnosis - she has a Grade 3 Anaplastic Posterior Fossa
Ependymoma.”
The baby has since endured 12 months of chemotherapy,
which the mom said has worked far better than her consultant had
previously thought it would. In February this year she also had two
further surgeries.
Unfortunately, the small remainder of the tumour is inoperable as it is in her brain stem.
The
family have been on track the last two months for Proton Beam Therapy,
which they were confident would be funded by the insurance. But the baby's most
recent MRI scan has shown a previously unnoticed mass within her brain
stem. This new discovery is part of the original tumour and not new
growth, which means her tumour now exceeds the size requirements for the insurance
funding by a few millimetres.
Lauren said: “We are now faced with
the agonising choice of having to self fund life-saving Proton Beam
Therapy which not currently available in the country, or give her
conventional Photon Radiotherapy which we believe would cause more long
term damage to her, as it also hits healthy brain tissue. This can be
avoided with targeted Proton Beam Therapy.
“We never expected it to be cancer.
We knew something serious was wrong with our daughter and that we
needed answers but we still had hope that it wouldn’t be something so
awful. It was a big shock to hear and a lot to take in but once we had
an answer we were relieved that they would be able to treat her and do
something to make her get better.
“She doesn’t understand the
diagnosis at all, this is all she has known. She has spent more of her
life in hospital than she has at home. She is developmentally delayed
and still cannot walk or even stand unsupported, she can only say a few
words but has good understanding when other people are talking to her.
“She
has some hearing impairment due to the chemotherapy. For us we don’t
have a normal family life, there are times when we are at hospital and
times when we are at home, she can’t go out and do any of the things
that other children her age would. She has no immune system so has to be
kept away from large numbers of people, even a cold could leave her
hospitalised for days.”
In a bid to get funding for the baby’s Proton Beam Therapy, the family have set up a Just Giving Page.So far, online, they gave raised £11,435. But the family have lots of fundraising events planned in person.
The symptoms of a brain tumour vary depending on the exact part of the brain affected.
According to the specialists, common symptoms include severe persistent headaches, seizures, persistent nausea,
vomiting and drowsiness, and mental or behavioural changes, such as
memory problems or changes in personality.
Progressive weakness or paralysis on one side of the body and visit or speech problems can also be indicators.
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Labels: Brain tumour, chronic fatigue, hampers memory, mental & behavioural changes, nausea, paralysis, Proton Beam Therapy, speech problems, Targeted Therapy